I’m getting some post-PantheaCon discussions coming through my social media feeds, with much said on the topics pertaining to inclusion–the need for great heaping gobs of it–for “everyone.” Reading these posts, I always have the pitiful question, “does that mean people like me too?” Generally, it doesn’t.
I ‘ve never gone to PantheaCon or any other neo-pagan convention because my disability is seldom accommodated. I didn’t go to this last PantheaCon either–the very last, ever, apparently–but some friends of mine just got back from it. These are people who have a long history with the event and with some of its founders. I’m talking “Old Guard Pagans” who have been active for a long time in Northern California. One of them brought back a stack of ephemera from the conference so I’m looking through the flyers and postcards, as well as the conference program, to see what I missed.
And, frankly I’m also looking to see if any one of these organizations, events, or teachers bother to put the magic words, “Come Fragrance Free,” on their ephemera. But before I get too curmudeonly and critique-ish about the program and ephemera, I need to say a few things first and ask a few questions.
Here’s the Pathos.
Please take a few moments to consider the following. Can you imagine:
Living like an “almost hermit” for a major portion of your life, simply because consumer toxins, including fragrances, are in wide use?
Becoming ill, asthmatic, or brain-fogged after ordinary outings such as trips to the grocery store, dental and medical appointments, buying new tires, meeting a friend for lunch at a restaurant, going to a concert or event, attending a class, filing out forms at government agencies such as DMV or Social Security, venturing outside when a neighbor is doing laundry, taking public transportation, using a public swimming facility, and pretty much any other activity that involves other people and poor indoor air quality?
Finding out that friends, family members, and lovers or spouses prefer their toxic products to spending time with you?
Finding that you’ve lost the love and concern of people you deeply love, because accommodating you is just too much work and they’ve grown tired of it?
Not having a job, as there are practically no fragrance free workplaces, and not being able to get disability benefits either?
Having your options for affordable housing severely limited due to toxins used in building products and home furnishings, as well as by people who could have been roommates?
Finding that most of your social contact takes place online, but then being shamed for it?
Being told that your sufferings are imagined or exaggerated, or the result of negative thinking? Being told you don’t “look” sick or disabled?
Seeing medical and mental health professionals who have little or no idea what you are talking about?
Being constantly exposed to substances that make you sick, tired, brainfogged and frustrated, just in order to have something that remotely resembles a normal life?
And finally, can you imagine all of the above and also being denied physical entry to spiritual communities, fellowship, and solace?
I could go on.
Welcome to my life and the life of every other person I know who copes with “Toxicant Induced Loss of Tolerance,” also known as “multiple chemical sensitivity,” “chemical injury,” or “environmental illness.” We not only cope with “invisible disabilities” but are also invisible ourselves, as we “don’t get out much” and most dialogue about inclusion & disability and environmental health & justice take place without us. For most people, we do not exist. And there are no social programs to assist us with our special needs. There are no celebrities or major philanthropists championing our cause. As for allies–there are only a few.
Now For the Curmudgeonly Part
Back to my examination of the PantheaCon program and ephemera. In the program, I don’t see any of those magic words that address disability accommodation and indoor air quality, such as “please attend fragrance free to allow people with asthma and enviornmental illnesses to attend.” The program also does not have a section with disability access information. I do notice “no smoking” and “no incense, smudging or candles” policies are in place, and those are certainly helpful to preserving some semblance of breathable air. However, the lack of restriction pertaining to fragrance use in public spaces, workshops, and rituals makes the PantheaCon (and any conference) a dangerous place for someone like me.
I also skimmed through the “Event & Ritual Etiquette,” looking for some awareness of “share the air” manners, but there’s nothing. None of the hospitality suites, workshops, ads, or group events contain accommodation language either, EXCEPT for the following:
(1) Katrina Rasbold’s The Limpia: Cleansing the Mind, Body, Spirit workshop (p. 20) specifies that “no smoke, scents, or scented sprays are used in this workshop.” Reading this makes me want to adore her!
(2) Dree Amandi’s Aromatherapy Magick-Spellcraft warns that “we will be actively using essential oils, hydrosols, and carrier oils in this space.” Such warnings are also deeply appreciated, though use of such substances in a workshop may also affect my ability to attend adjoining workshops in that time frame, or workshops which take place in the same room or nearby afterwards.
Workshops that might be expected to use this inclusive accommodation language would include anything with a breath, “eco,” or healing theme, such as: Selena Fox’s Circle for Planet Earth and her Brigid Healing Ritual; EcoActivism & Climate Change, which was put on by Circle Sanctuary EcoActivists; The Power of Yoga–Energy and Healing with Lisa J. Hamlin; Chants for the Earth with Starhawk and Evelie Delfino Sales Posch; Eco-Magical Activism with Starhawk; possibly The Healing Isle with Christopher Penczak, though the talk of “potions” and “plant essence” makes me nervous; Theurgic Activism Panel; Tomorrow’s Pagan Panel: and Envisioning the Future of Paganism with Solstice.
Such compassionate and inclusive language would also be nice for Elysia Gallo’s Pagan Speed Friending, as I couldn’t risk being “speed friended” by a well-meaning person off-gassing toxic petrochemicals in the form of personal care products. And for anyone talking about inclusion and diversity as part of their program–likewise. Set an example of inclusive welcoming by asking people to be considerate on behalf of those who depend heavily on the “kindness of strangers.”
Of all the many pieces of ephemera gathered by my friend, only one is inclusive of people with multiple chemical sensitivities and respiratory ailments. This is the postcard advertising the “JeWitch Camp,” an event with “Rabbi Arthur Waskow, Starhawk, and Friends.” It has the magic words: “come fragrance free.” (And again, I want to adore them!)
I think you get the idea.
I won’t say I never go to conferences, ever, but the ones I attend are professional conferences which enable me to gain CE credits to update my professional certifications and/or may help boost my diminishing private practice–my only means of work. Still, I don’t go to more than one every few years, and I build in recovery time and escape routes and limit my attempts to socialize. It sucks, frankly. Read my Fragrance-Free FAQ on my professional site to know more.
Why Are Pagans OK with Polluting the Air-One of Our Four Essential and Sacred Elements?
Ea is a word in the Hawaiian language that first means “sovereignty, rule, independence.” Its second meaning is “life, air, breath, respiration, vapor, gas; fumes as of tobacco; breeze, spirit” (Pukui, M.K. & Elbert. S.H. (1986). Hawaiian Dictionary: Hawaiian-English, English-Hawaiian. Honolulu: University of Hawai’i Press, p. 36). To me, the connections between these two categories of meaning are highly significant.
And I want to know why–when air is our sacred elemental symbol of mental powers and intelligence–we humans are short-circuiting our brains with deliberate inhalation of toxic, petrochemical fumes, via consumer products? And why are we so stupid as to deliberately pollute our air, INDOORS and out, along with our water and soil? As pagans, shouldn’t we be extra aware and respectful?
And why isn’t consensuality considered? Why is the physical violation of other people’s bodies with airborne toxic chemicals not a matter of discussion? We ban smoking in public places. Why not scents and fragrances and essential oils, which contain some of the same cancer-producing and respiratory irritant chemicals found in tobacco smoke and vaping?
The answers to the above questions have lots to do with capitalism, entitlement, and industry pressure on legislation and policy. And they also have a lot to do with who we feel is worthy of “accommodation” and assistance. There is something in the American psyche that despises the “snowflake”–those seen as weak are deemed unworthy. And people with significant adverse reactions to chemical toxins are among the “snowflakiest” of us all.
In 1998, Scientific American published a study that claimed that the air in the average American home is MORE polluted than the air around most outdoor Superfund Clean-Up sites. Here’s the PDF: SciAM-EverydayExposure-3 As for me, I’d love to have a study done on the air quality in the average pagan conference in an average hotel. And then I’d like something done by way of solving this problem, so that we may all breathe freely in fellowship with each other. Pagan conference organizers, I’ve thrown down the gauntlet. What say all of you? Or can you still not hear me and those who are like me? A 2018 study showed that one in four Americans suffer from environmentally caused illnesses (Ann Steinemann study–download here). So, with this increase in illness, how long can you ignore the effects on people in pagan communities? How long can you refrain from a proactive examination of this issue of indoor air pollution, and from creating policies that seek to diminish the health consequences of attending your events?
Spirits of the Air, I conjure thee–give us the awareness to do better, help us heal your sacred substance, and that of the earth, and of all living bodies–else we be doomed to choke on our hypocrisy and ignorance as all living things perish around us, through our selfishness.